Life has become so normal so fast. A week ago, Dr. Emans said that the outcome from Ben’s surgery was “phenomenal”. Ben no longer needs me, or anyone else, on a minute-by-minute or even hourly basis. So, I’m back to traveling, for work and sometimes for fun. But let me tell you about the first […]
Category: Surgery
Ben’s Road Traveled
April 22, 2013 at 10:39 am
Two roads diverged in a wood, and I, I took the one less traveled by, And that has made all the difference. –Robert Frost It’s been 18 days since Ben’s surgery at Boston Children’s Hospital, which involved attaching titanium rods to his T1 and T12 vertebrae to create tension to straighten his thoracic spine. By […]
@BraveBenE
March 23, 2013 at 5:35 pm
Ben hasn’t had surgery since November 2011—almost 1.5 years ago. 2012 was a surgery free year! But on April 4, 2013, that will all change, when Ben undergoes insertion of growing rods along his entire spine to help address his severe scoliosis resulting from Schwartz-Jampel syndrome. Over the last 10 years, Ben has been cared […]
