Ben no longer has any good books to read. This is what he told me this morning. Zero Hour, the latest in the H.I.V.E series by Mark Walden, automatically downloaded to his Kindle this past Tuesday morning, is now finished. He said, “I might have to start reading A Children’s History of England“–referring to a […]
Category: Schwartz-Jampel syndrome
Therapeutic Riding Rules
March 17, 2012 at 6:41 pm
For much of the past six years, Ben has paid weekly visits to friends Blue, Rags, Bay, Snoopy and Terry each Saturday morning–and today was no exception. Terry is the Co-Founder and Director of Therapeutic Riding at BiNA Farm. The rest? Horses. When Ben was 4, I realized he needed more than one physical or […]
Children’s Hospital Boston Listens!
March 13, 2012 at 11:37 pm
I love it when I feel heard. Not just head-nodding or pretend listening, but the kind of listening that leads to action. Children’s Hospital Boston has really heard me. Today, Ben, my husband Sherin and I attended one of Ben’s many orthopedic appointments. Ben sees orthopedic specialists for his hips, knees, wrists/elbows, spine and also […]
“Ben’s Busy Day at the Hospital”
March 10, 2012 at 12:46 pm
Have you ever looked for books to help your child cope with an upcoming surgery, or to help your child get through a long bout of illness? If you have, then you know that most children’s books in this genre are based on one type of surgery (eg, ear tubes) or for minor activities like visiting […]
Hello world!
February 28, 2012 at 9:05 pm
I’m on London time after a glorious week’s visit there, visiting old friends and nostalgic settings. I’m often awake at 4 am, thinking about the things I should be doing, but also about the things I really want to do. One thing that I’ve wanted to do was write a blog about our lives with […]
