Two roads diverged in a wood, and I, I took the one less traveled by, And that has made all the difference. –Robert Frost It’s been 18 days since Ben’s surgery at Boston Children’s Hospital, which involved attaching titanium rods to his T1 and T12 vertebrae to create tension to straighten his thoracic spine. By […]
Tagged: Hospital appointments
@BraveBenE
March 23, 2013 at 5:35 pm
Ben hasn’t had surgery since November 2011—almost 1.5 years ago. 2012 was a surgery free year! But on April 4, 2013, that will all change, when Ben undergoes insertion of growing rods along his entire spine to help address his severe scoliosis resulting from Schwartz-Jampel syndrome. Over the last 10 years, Ben has been cared […]
Red Carpet Reception
March 1, 2013 at 11:19 pm
He wore stripes, just like many Dr. Seuss characters, but was missing a great big hat. But that didn’t stop a standing ovation from the Sprague School community, as Ben wheeled his walker down the red carpet Friday morning to accept the “Hats off to Reading” award at Sprague’s 6th annual A-CAT-emy Awards–the reading and […]
Children’s Hospital Boston Listens!
March 13, 2012 at 11:37 pm
I love it when I feel heard. Not just head-nodding or pretend listening, but the kind of listening that leads to action. Children’s Hospital Boston has really heard me. Today, Ben, my husband Sherin and I attended one of Ben’s many orthopedic appointments. Ben sees orthopedic specialists for his hips, knees, wrists/elbows, spine and also […]
