Sunday evening I was driving down a residential road with Charlotte and Ben, and slowed down when I saw a couple walking their dog. It was dark, but I caught a glimpse of the dog and saw that the dog had hind wheels instead of hind legs. I told C&B this and they both immediately […]
Tagged: Schwartz-Jampel syndrome
Summer Computing Fun!
July 23, 2012 at 9:21 am
Finally, by the middle-to-end of July, I feel like we’ve got the summer rhythm going. Boy, it took a while! For me, summer is one of those things that I know will hit, but like the first snowstorm, I am always surprised when it does. I wish Sherin and I had the time to take […]
Flying High!
June 10, 2012 at 10:41 pm
When Ben was 5, his greatest wish was to fly. He didn’t care how–either planes or rockets would do. He was granted a room in which he could dream of flying, from the incredibly generous Room to Dream Foundation, who selected Ben as the third child (at that time) to benefit from a newly created […]
Are You Attached?
May 16, 2012 at 10:49 pm
When my oldest daughter Lucy was born in 1998, it took me one week to realize that this young lass was never going to sleep according to my schedule. Daytime–always asleep. Nightime–always awake. Unless I planned on becoming nocturnal, I was just going to have to figure out a way to cope. Enter the family […]
Eighteen Years…and Counting
April 23, 2012 at 10:49 pm
On August 16, 1991, I returned to London after a two-week trip to visit my dad and my grandparents in Kolkata, India. My grandfather had recently had a stroke, and I needed to get to Kolkata fast. The cheapest way? Fly Aeroflot–via Moscow, Sharjah and New Delhi, eventually landing in Kolkata. I’ll never do it […]
Ben Elwy, Medical Educator
April 16, 2012 at 12:56 am
The afternoon began with a plank-holding contest, followed by a heated game of chess. Then there was a bit of Minnesota trivia, a demonstration of Sprague band’s latest repertoire involving the snare drum and bells, and finally, Ben performed (death-defying, in his mother’s opinion) spins in his walker, using only his arms for support, in […]
Passion, for Ben
April 1, 2012 at 10:50 pm
Lucy had a far-off soccer game, and Charlotte has a hacking cough, so it was just Ben and me this morning at St. John’s, to celebrate Palm Sunday and re-live the Passion. Ben didn’t complain that his sisters weren’t going with us. Ben’s only complaint–ever–is about practicing piano. Being at church with Ben is such […]
Unaffordable Health Care
March 26, 2012 at 10:34 pm
Here is a little quiz: How much money did the Elwy family pay in out-of-pocket health care costs in 2011? a) $5,000; b) $21,000 or c) nothing. I’m not telling….yet! The media is viral with coverage of the many case filings at the Supreme Court of the United States regarding the Affordable Care Act (ACA). […]
Voracious Reader Ben
March 23, 2012 at 11:32 am
Ben no longer has any good books to read. This is what he told me this morning. Zero Hour, the latest in the H.I.V.E series by Mark Walden, automatically downloaded to his Kindle this past Tuesday morning, is now finished. He said, “I might have to start reading A Children’s History of England”–referring to a […]
Therapeutic Riding Rules
March 17, 2012 at 6:41 pm
For much of the past six years, Ben has paid weekly visits to friends Blue, Rags, Bay, Snoopy and Terry each Saturday morning–and today was no exception. Terry is the Co-Founder and Director of Therapeutic Riding at BiNA Farm. The rest? Horses. When Ben was 4, I realized he needed more than one physical or […]
