Tagged: Schwartz-Jampel syndrome

“Ben’s Busy Day at the Hospital”

Have you ever looked for books to help your child cope with an upcoming surgery, or to help your child get through a long bout of illness? If you have, then you know that most children’s books in this genre are based on one type of surgery (eg, ear tubes) or for minor activities like visiting […]

Hello world!

I’m on London time after a glorious week’s visit there, visiting old friends and nostalgic settings. I’m often awake at 4 am, thinking about the things I should be doing, but also about the things I really want to do. One thing that I’ve wanted to do was write a blog about our lives with […]